ISCAO: Liaison Nurses in the management/ taking care of Cancer in people with intellectual disabilities, in Occitanie region.

                                 
                                                                                                                     (Manon Vulcano)             (Marion Miller)               

Liaison Nurses

ISCAO was set up in January 2019 within Oncodéfi (www.oncodefi.org), an association under the 1901 law, which aims to provide optimal cancer management, from prevention, screening, to treatment and follow-up, for people with intellectual disabilities.
President: Prof. Jean-Bernard Dubois, Director: Dr. Daniel Satgé.
ISCAO is funded by the Occitanie Regional Health Agency (ARS- Occitanie), and is part of the regional health project (PRS) Occitanie region.

In 2016-2017, for one year, the ARII research project was led by Oncodéfi in Hérault and carried out by Anne Chanel, a nurse employed by Oncodéfi and two volunteers, Sylvie Giordano, director of a medical and social institution, and Jocelyne Vianes, an executive nurse in oncology, with the support of the Malakoff Médéric Handicap Foundation. It showed the many difficulties at all stages of the care process for people with intellectual disabilities affected by cancer: support, appointment scheduling, diagnostic procedures, therapeutic and post-therapeutic follow-up.
Currently, ISCAO operates in the medical and social institutions of the entire Occitanie region.

Certified report

Cancers are as frequent in people with intellectual disabilities (IDPs) as in the general population, but they are different and above all poorly known, which leads to difficulties in diagnosis and management. Cancers are often discovered late, and for this reason their treatment is heavier, more difficult and the chances of cure decrease.
Difficulties are compounded by a lack of links between health care teams and medical and social institutions professional teams.

For this reason, cancer screening and prevention are of great importance.

Goal

1. Promote the knowledge of medical and social professionals about cancer: screening, prevention, awareness of symptoms that may suggest cancer.

2. To help support people with intellectual disabilities at all stages of cancer, while respecting fundamental ethical principles, in particular the dignity of the person.

3. To network the various professionals in the health and medico-social sectors.

Missions

- Inform about prevention, cancer screening and warning signs.

- Respond to the requests of institutions (information, advice, and networking) in the care of a resident affected by cancer.
  During their interventions, ISCAO liaison nurses do not provide direct care.

- Work in conjunction with the Institute of Cancer in Montpellier (ICM), with hospitals and clinics, and in collaboration with the Onco-Occitanie cancer network.

 Diapo_ISCAO_Sensibilisation_dépistage.pdf

Methods of intervention

Any intervention is subject to the written agreement of the director of the establishment.
They can be done by:
- On-site interventions in institutions,
- Or by video-conferencing. 
Interventions carried out within the ISCAO framework are free of charge.

Contact Information

Liaison nurses:
Marion Miller: 07.61.61.60.22.12 / This email address is being protected from spambots. You need JavaScript enabled to view it.
Manon Vulcano: 07.61.60.60.23.12 / This email address is being protected from spambots. You need JavaScript enabled to view it.
Fixed line nursing office: 09.81.18.99.77
Chief:
Dr. Daniel Satgé
Association Oncodéfi,
Parc Euromédecine,
209 Avenue des Apothicaires,
34090 MONTPELLIER