Oncodefi National Days
The first Oncodefi National Days (Journées Nationales Oncodefi) will present the general cancer and intellectual disability issues.
Poorly known field. It will be a practical approach of these problems.
It’s dedicated to a French speaking audience, particularly for professional caregivers, oncology teams and families.
They will take place, from 26th to 27th March 2020 at Montpellier City Hall.
During the second international symposium in 2018 on cancer in persons with intellectual disability, French speaking audience asked for a congress in French language.
What are Oncodefi's objectives?
- Care assistance
- Information
- Research
Who does Oncodefi support?
- People with intellectual disabilities
- Their families and friends
- Professionals in the medical and social establishments
- Doctors and scientists
Inter-symposium 2020
An inter-symposium is anticipated at the Frambu Center in Siggerud (near Oslo) in Norway,on 18 and 19 May 2020.
This event will be organised by Mrs Stine Skorpen in collaboration with the Frambu Resource Centre for Rare Disorders and the Norwegian National Advisory Unit, Ageing and Health.
ISCAO Team
• ISCAO device
The ISCAO system was implemented in January 2019 within Oncodéfi.
This regional system covers the 13 departments of the Occitanie region and is composed of two nurses responsible for linking the network of medico-social institutions with cancerology services in the public and private sectors.
• Missions of the ISCAO system
Inform about prevention, cancer screening and warning signs.
Respond to the requests of institutions (information, advice, networking) in the care of a resident affected by cancer.
During their interventions, ISCAO liaison nurses do not provide direct care.
Participate to the progress on cancer in persons with intellectual disability
Cancers developed by persons with intellectual disability are poorly understood and
different from those in the general population. For psychological and biological reasons, the treatment of these cancers is more difficult.
ONCODEFI , the meeting place of two previously distinct medical fields , namely cancer and intellectual disability, is an original project, the first one ever to have been launched in France or Internationally.
It covers 7,000 new patients each year in France, 35,000 new patients in the USA and over 800,000 in the world.
